The Multidisciplinary Approach in Muscle Diseases Workshop, organized in collaboration with Istanbul University’s Center for Disability Studies and Research (ENUYGAR) and the Turkish Muscle Diseases Association (KASDER), served as a crucial platform bringing together experts, civil society representatives, and individuals with disabilities. Representing the field of occupational therapy, Beyza Aslı BİLSEL, a faculty member in the Department of Occupational Therapy at Istanbul Gelişim University, Faculty of Health Sciences, was also invited to participate in the workshop.
The Turkish Muscle Diseases Association (KASDER) is a civil society organization established to improve the quality of life of individuals living with muscular diseases, advocate for their rights, and enhance social awareness. The association provides social, psychological, and physical support to affected individuals by working to ensure equal access to healthcare, education, and employment. Furthermore, it contributes to the development of more effective policies related to muscular diseases through collaborations with governmental institutions and academic circles.
The Istanbul University Center for Disability Studies and Research (ENUYGAR) is dedicated to enhancing the quality of life of individuals with disabilities, conducting academic research, and promoting social awareness. The center engages in interdisciplinary studies on disability-related issues and develops projects in the fields of education, accessibility, and rehabilitation. Additionally, it collaborates with public institutions, non-governmental organizations, and academics to strengthen the rights and inclusion of individuals with disabilities.
During the workshop, the indispensable role of occupational therapy in the multidisciplinary management of muscle diseases was particularly emphasized. Occupational therapists play a crucial role in enhancing individuals' independent participation in daily life activities, supporting both physical and cognitive functionality, and improving overall quality of life. Their work includes developing adaptive strategies, modifying environments to promote accessibility, and maximizing functional independence. Occupational therapy is not only vital for individual rehabilitation but also serves as a core component of multidisciplinary healthcare teams. In this context, collaboration with different disciplines is essential to fostering social inclusion, raising awareness, and improving accessibility for individuals with muscle diseases.
Participating in this workshop as an occupational therapist contributes to the development of a comprehensive approach that prioritizes the rights, needs, and well-being of individuals living with muscle diseases.
Sharing the multidisciplinary team’s final report with governmental agencies, non-governmental organizations, and academic communities will be an important step toward long-term advocacy efforts. Participation in such workshops is highly valuable for enhancing the visibility of occupational therapists, strengthening scientific and social awareness, and promoting inclusion in healthcare and society. Engaging in this process is not only a professional responsibility but also a meaningful contribution to social transformation and inclusivity.
