World ALS Day, celebrated around the world every year on June 21, aims to raise awareness about Amyotrophic Lateral Sclerosis (ALS), a rare and progressive nervous system disease, to support patients and their families and to raise public awareness.
What is ALS?
Amyotrophic Lateral Sclerosis (ALS) is a progressive neurological disease in which motor nerve cells in the brain and spinal cord are damaged, leading to progressive muscle weakness and loss of mobility. It is usually seen between the ages of 40-70, but can occur at any age. Although the exact cause of the disease is unknown, genetic and environmental factors are thought to be effective. Over time, ALS can also affect basic functions such as swallowing, speaking and breathing.
Early Diagnosis and Multidisciplinary Support is Important
Stating that early diagnosis and follow-up of ALS improves patient quality of life, nursing care is vital in this process. Nurses take an active role especially in areas such as respiratory follow-up, nutritional support, maintaining physical mobility and psychosocial support.
Events Continue for ALS Awareness
Every year, universities, healthcare organizations and patient associations try to raise awareness of ALS through various seminars, social media campaigns and support walks. On June 21, while calling for solidarity for ALS patients and their families, the contribution of healthcare professionals to this process is once again emphasized.
Public Awareness Saves Lives
World ALS Day is of great importance to break down misconceptions about the disease, emphasize the importance of early diagnosis and create policies to ensure equality in access to treatment. Scientific studies against ALS are considered as harbingers of promising developments to slow down or stop the disease in the coming years.
